Ben knew to get rid of that tissue paper fast. Savannah started chewing on her bear as soon as she got it out of the sack. Yes - they are washable !
Drew - Savannah - Ethan - Ben
I sewed their names on their bears when I made them.
And now on to the Diaper Darlings party !
xxxxxxxxxxxxxJoyce xxSuexx Libbyxx Tempexx Lacyxx Linda
The first four are 4 of the 6 Captains for this team. Lacy is Suzanne's best friend from childhood and then me - the coordinator for this team of Mom's, Grandma's, Grandpa, and Great Grandma. Just think of all the "adopted" grandparents these kid's have! And one Diaper Darling will have her first child in March.
Below the pictures you will find the story of the Diaper Darlings with links to the Share The Care web site. It was so much fun having all of us together at one time and loving on those kiddo's. And yes I made the cake for this party also.
You did not have to worry about stepping on a child - they were never put down !
I like to I write about my daughter Marcie and how ALS has affected her life and my life - I also write about Share the Care – a wonderful way to share the care to others who may need a few extra helping hands at one time or another. It could be helping a family who has sickness in their family as my family does or helping a family who has been blessed with multiple babies all born at the same time. In both cases the families can do without the extra help but to those who lend the helping hands – they are the one so blessed.
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I have helped a lot of families form Share the Care teams – for people who have a family member with ALS (Lou Gehrig’s disease) or as I have done in the past few months - help families of multiples form care teams for their new babies.
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I like giving back to others that which was given to me!
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I did not understand this until I had the opportunity to coordinate the Diaper Darling.
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Ten years ago I was teaching preschool and a group of people gave me some extra helping hand for 5 years – you can read all about this on the Share the Care web site http://www.sharethecare.org/
and read about Marcie’s Guardian Angel Team at http://www.sharethecare.org/pages/yourstories/stories/ystories_marcie_gibson.html - or look to the right of the page and you will also find the link: Share the Care for Marcie / Steece Quads.
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I finally understood 9 years later what people had told me for the 5 years they help me – they were the ones blessed by helping me and Marcie.
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The Diaper Darling – the “friends” who give Suzanne extra helping hands – are all Volunteers – mostly grandma and grandpa – some even great grandma – a few young mothers. The Steece quads have given the Diaper Darlings such great joy! Going to the Steece’s house is so much fun. I do not get to go nearly as often as I would like since I do care for Marcie at home - but all the Diaper Darling have told me many time what a joy it is lending extra hands to love on those babies and get loved back. And the Diaper Darling are so appreciated by Suzanne, Joe and their families – most living out of town so we are their “in town” family.
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I say all this so everyone reading this understands being a part of this team is so neat. God gave Suzanne and Joe 4 babies all at one time because HE knew they could care for them alone – but HE gave the Diaper Darlings to the Steece’s because HE knew the Steece quads had so much love to give to others !
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If you want to know more about how to form a Share the Care team just ask me - leave me your email address I'll be glad to help you.
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We had a GREAT party on Aug. 3 – to celebrate us as Christians being able to share the care – and isn’t that what God’s people do!
Visit Suzanne's blog for more info and pictures:
http://thelifeofsuz.blogspot.com/
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4 comments:
I read your whole blog and you are an amazing person!! My prayers and thoughts go out for your daughter and your family!! Your daughter is a very strong person and she also is amazing!!
And I thought the Quad blogs made me cry! It was so precious to hear the whole story and history of the Share the Care ministry. Thansk for sharing yor sotry and your gifts of love and service with others.
I stumbled across "The Quads" blog which led me to you blog (I do not know either of you but have been so encouraged by reading this story!). I work the ALS Association and am familiar with Share the Care and the wonderful model it provides to families in need of support. I have been encouraged by the thoughts and actions displayed in your blog. You and your "team" are truly an example of Christian service. May God bless you and your daughter as you travel this journey!
Hi!! Thanks for leaving the comments on my blog! I hope it is ok that I linked your page so others can find it.
I did have a professor in college that found out he had ALS at the end of the year. He was my biology professor. He was a great teacher and man! He was very strict with grading and always said he did not round up. If you got and 89.9 then you got an 89. He announced on our last day that he was retiring early because he had just found out he had ALS. He asked that we all pray for him to pass peacefully and quickly as he did not want to suffer for years. There was not a dry eye in the class that day. He posted our final grade on the door a few days before report cards and I made an 89. Well when my report card came in the mail he had bumped it up to a 90 and giving me an A instead of a B. He was a great great man! One of my best teachers of all time. He died a little over a year later and his service was standing room only.
I am sure with ALS it has opened up worlds of wisdom, faith, knowledge, wonderful people, ect as has cf for us but I know we would both give it all up to not have ALS and CF in our lives but I know it is part of our lesson here on earth. Some paths in our life we just don't have a choice but we do get to choose how we will be while going down this path and I really try and look for the best and be positive. When I meet people like you it really gives me inspiration.
I am posting something today on my blog that really helped me when we found out about cf. Please stop by my blog any time too! I will check back for updates on your blog. Hope your week is going well.
ps. I don't know of any quads right now but I will be on the look out!
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